'Claine
in the News!
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Articles at the Bottom**
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Her
Heart Still Lives
By Edward Ray Parham
Below: a plaster cast of the infant's hand, made by a nurse at Children's Hospital.
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In a house at the end
of Nix Street, there live Greg and Karen Loomis and three of their four
daughters -- 10-year-old Jessica, Sarah Beth, nine, and Katelynn, four. It is a
bustling household, with the girls frequently preoccupied with games and puzzles
(if not the TV), their dad at work on a home computer in an office not quite
walled off from the rest of the den by some cabinet shelves, their morn trying
to keep order. Evidence of family life is abundant, with photograph portraits
crowding the cupboards. Near the front door is an impressive collection of
hardware -- trophies the girls have brought home from various pageants. Newest
of the lot appears to be the brass column Sarah Beth brought home from El Dorado
as Petite Miss Mayhaw. In the same contest, Katelynn got an award for finishing
as first runner-up (or, as she tells it, “winner-up”) in the Toddler Miss
Mayhaw category.
Up on the opposite
wall is a drawing of the only missing daughter sketched partly out of the
imagination of a family friend, Karen finds it somewhat unsettling because it
shows Maclaine with her eyes open.
“Of course, Maclaine
never opened her eyes” during tile three days she lived last summer, says her
mother. The picture “, shows her as she might have been,” looking up at the
artist while lying ill repose in a small gown and bonnet, smiling a sweet
infant’s smile.
The hard reality of
Maclaine’s brief life can be seen in other pictures around the room. One
framed photo shows her swollen, darkened face partially hidden behind breathing
hoses and siphoning tubes. She is lying in a different sort of repose, on a
hospital table. The only peace to be found in the heartbreaking image comes in
knowing she was completely oblivious to her physical predicament. There was no
medical attestation that-- outside the womb she ever possessed the capacity for
thought.
Most of Maclaine’s
little body lies buried in a little grave beside one of the lanes which run
through Memorial Park Cemetery out on Maul Road. But not all. Clear across the
nation, in a small Michigan community called Downriver, her little heart still
beats in the diminutive body of a year-old boy. He might not be alive today but
for the extraordinary sacrifice of the Loomis family and the miracles which are
made possible by the science of this age.
The boy’s name is
Samuel. His first birthday comes Sunday (May 7). He and his parents and his
three-year-old brother will not celebrate the big event at home in Downriver,
Michigan surrounded by family and familiar friends. They have already traveled
down to Arkansas, to a place they have never been. And on Sunday morning --
Samuel’s birthday morning -- they’ll make their way into Camden’s
Hillside Baptist Church for morning services, the church in which Maclaine would
have grown up had she survived, to pay homage to the infant who died so that
another could live.
Karen entered her
pregnancy with considerable confidence brought on by all sorts of advantages.
Being an experienced mother helped. Being a registered nurse at Ouachita County
Medical Center strengthened her position even more. The experiences of her
medical carter meant she was mentally prepared to handle any personal emergency.
Having the emotional support of the hospital staff while at work was a
tremendous boost. Her sister-in-law is a nurse in the Labor and Delivery
Department. Expert opinions were around every comer. Any needed medical
equipment and procedures were close at hand. Karen seemed to want for nothing as
she carried Maclaine those sine months. But....
Early in her
pregnancy, she became concerned upon learning fifth disease was circulating
among children in the community, and realizing that her own kids had probably
come into contact with it. Fifth disease is caused by a virus and has little
effect on its victims, usually children. “Some children may have vague signs
of illness or no symptoms at all,” says one medical source. But it can cause
serious problems for unborn children, and Karen knew this.
Sometime later, she
sensed her baby might be having seizures. The baby’s feet quivered at times,
and Eaten could feel the tiny convulsions against her side. One of the Loomis
daughters has epilepsy, and Karen wondered if this newest member of the family
had developed the same genetic trait.
Not long before the
baby was due, it assumed a breached position on, meaning the baby was lying
horizontal above the birth canal. The breach lasted only a week, but the
incident added to Karen’s suspicions that this pregnancy was becoming too
complicated.
Four states away,
other events were unfolding.... events which would eventually touch the lives of
Greg and Karen and the rest of their families, The events first come to light in
this story by Pat Andrews, an editor for the suburban weekly
News-Herald newspapers in the Detroit, Michigan area:
Jump to Samuel's first news article: Seven-week-old infant needs heart transplant
As July of 1999
appeared on the calendar and Karen’s labor began, the growing list of
difficulties seemed to confirm her fears. The day Maclaine was born -- Saturday,
the 3rd -- she went into the hospital’s Labor and Delivery room at 6 a.m. for
a 17-hour marathon stay. Epidurals administered to her “didn’t take quite
right,” and it took three tries before the trunk-numbing drip line was
successfully inserted into her backbone. At one point she felt an unexpected
movement in her abdomen, followed by a “burning pain” in her side. Neither
she nor anyone in attendance knew at the time, but Karen had just suffered an
internal rupture and was bleeding profusely. She would require two units of
blood after the baby was delivered.
With a fetal monitor
of the unborn’s heartbeat saying the baby was in physical distress, Karen was
wheeled out of L&D and into the hospital’s operating room for a
cesarean-section birth. No more waiting for a natural birth. Her lower
extremities deadened, Karen was awake for the entire procedure as the surgeon
scalpeled her abdomen in order to get the baby out.
“For days afterward,” recalls Karen, “I could still
hear the
beep-beep-beep of
that monitor.”
From the time the baby
first appeared, it was motionless, entirely limp. The surgeon rushed it to a
nearby warming table where another physician detected a faint pulse and coaxed
the infant to breathe, however weakly. “I remember somebody asked for the
time, and somebody else said it was 23:31 hours. Other than that,” Karen
remembers, “nobody said a thing. There was absolute silence. I never heard the
baby cry.
“The baby girl had
made a timely arrival. She was not underweight-- not at six pounds, seven
ounces. There was no outward sign of trauma to indicate why she was unable to
breathe on her own. After reviving her, the puzzled staff called Arkansas
Children’s Hospital in Little Rock, and a helicopter was soon enroute to fetch
Maclaine. During the two hours it took the copter to fly down from LR and land
outside Camden hospital, a therapist made the baby breathe by squeezing a
hand-action bulb. There was no alternative to keeping her alive. The hospital
has no ventilator small enough for infants.
At 4 a.m., the copter
touched down in the hospital parking lot. Maclaine--wrapped in thermal plastic
so she could retain her body heat, and placed in a bag for the flight to Little
Rock -- was brought to Karen’s side for a two-minute good-bye.
“Before they left, I
made them bring her to see me, because l thought I was never going to see her
alive again,” recalls Karen. The hospital staff opened up the bundle just
enough for Karen to reach inside to touch her foot, and then the baby was
hurried away.
That afternoon, as a
dose of post-operative morphine wore off, Karen reached for the telephone and
dialed up Children’s Hospital. “As a nurse,” she says, “I realized
things hadn’t gone well. I wash’ expecting to hear good news. I would have
been shocked if they’d told me she was doing great.”
The news was bad.
After the chopper
lifted off and turned North through the early Summer-morning skies, Greg went
home, showered and left for Little Rock with his Dad at the wheel. They reached
Children’s Hospital at 8 a.m. and went to the Neonatal Unit where they found
Maclaine “the biggest of the bunch” in the 80-bed wing. The neonatal staff
was “used to working with one-pound babies,” and said working with an infant
Maclaine’s size was almost a new experience.
But the staff had already conducted a few tests -- none with
positive results. Light in Maclaine’s eyes did not cause them to dilate. There
was no muscular reflex. An ultrasound scan of her brain appeared to show
widespread damage. A later electroencephalogram confirmed the worst: there was
no brain activity to be found. Doctors speculated she might eventually be
trained to breathe on her own, but that was the most which could be hoped for
her.
Back
in Camden, Karen was determined to make her way to Little Rock. “I didn’t
think Greg should have to be up there dealing with all this without me,” she
recalls. Losing a baby “is a hard thing to take alone,” so she made plans to
go to Children’s Hospital as soon as possible. There was even talk among the
hospital staff of sending her by ambulance.
First
thing Monday morning, arrangements were made for a nurse to accompany Karen to
LR in a car driven by her mother. “Technically, I wasn’t discharged,” and
under normal circumstances she wouldn’t have been allowed to go.
At
the Little Rock hospital, she was put in a wheelchair and pushed to the Neonatal
Unit, where Greg was found holding Maclaine in his arms - which wasn’t easily
accomplished, what with all the tubes connecting her to various life-preserving
machines. He joked that “next time, I want the cordless model baby.”
Family
members were already discussing the possibility of organ donation, and after
Karen’s arrival she put the issue to the Children’s Hospital staff. “They
were very surprised” but went about contacting the Arkansas Regional Organ
Recovery Agency, and by that afternoon a meeting of two dozen family members and
ARORA officials was organized in Children’s large conference room.
Karen
and Greg insisted upon donating Maclaine’s organs, and, as the ARORA people
left to find the necessary paperwork, they came to realize they were about to
embark upon a project they hadn’t expected to be so unusual. Children’s
Neonatal Unit had never before been involved in an organ transplant. “The
babies they usually have are too small for transplants,” Greg says he was
told.
Hillside
Baptist pastor Willis Moore was due at the hospital that evening for a
dedication service, so Karen and Greg and their girls and parents went back to
the place where Maclaine was kept to wash her and dress her for the occasion.
The infant’s limp form was placed in a pink outfit with a pink bonnet, and
everyone took turns holding her.
ARORA
officials returned with the paperwork for Karen and Greg to sign, delaying the
dedication. Afterward, “they would show up every 30 minutes” to check on
Maclaine mad conduct procedures, or give her medicine to prepare for the
transplant, recalls Greg. “Once the paperwork was signed, they were always
around there.”
Tuesday,
shortly after noon, final tests were conducted and Maclaine was officially
pronounced dead, even though the machines still made her breathe. Karen and Greg
and the girls continued to take turns holding the baby, until the time for the
operation arrived. They were told ARORA had only been able to place Maclaine’s
heart for transplant, and that a surgical team was on its way from Michigan to
save it for a two-month-old boy born with a heart defect.
Months
later, the Loomis family sits in the den of their home on Nix Street and
remembers those last moments with Maclaine, Karen and Greg and the girls
watching videotape o f them selves holding the infant a final time. “I love
you ‘Claine,” says little Katelynn as she smiles up at the camera over the
infant’s closed eyes.
Abruptly,
the next scene appears. It is of the baby, lying in a tiny white casket in a
viewing room at Proctor Funeral Home back in Camden. The ordeal is over, and
Maclaine is gone. Gone back to heaven after her three-day sojourn on earth.
Jump to Samuel's second news article: On the mend
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Maclaine
Sam |
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After burying Maclaine at Memorial Park, the Loomis family
returned to everyday life-- to work and church services and beauty pageants and
computers, etc. But there was no forgetting the experience of those three days
in July. In the months which followed, Karen and Greg became active in ARORA and
worked to raise awareness in Camden about the need for donated organs. Greg
created a Web site on the Internet dedicated to the subject, and honoring the
memory of “our little angel.”
Readers with internet access may find it at www.clainescorner.com.
ARORA informed them the transplant in
Michigan had gone well, but they learned little of the details. The rules call
for agencies like ARORA to serve as buffers between the families of organ donors
and recipients. Any contact between the Loomis family and the still-unknown
family in Michigan would have to wait until mutual consent, “and I’m sure
they had their hands full taking care of a baby that had undergone a
transplant,” Karen says.
Eventually, she found
words to express her thoughts to the people in Michigan, and months later sent a
letter -- anonymously, as required -- to them through ARORA. And sat back to
wait.
In mid-October, a
package from ARORA arrived at the house at the end of Nix Street. Karen made
Greg wait until she got home from work at the hospital to open it. Inside was
the gift of a little angel and a letter which read:
“Dear donor family,
“We were thrilled to
receive your letter. It was given to us on October 4. We are happy to know
answers to so many questions we’ve had about your family. I have written you a
million letters in my head, but fell short of putting the words on paper. Please
forgive us. There just aren’t enough words to tell you how much we appreciate
your most generous gift. Thank you from the bottom of our hearts for saving
Samuel’s life. At the worst moment of your life, you cared enough to help us.
We find happiness in your words ‘....she is up in heaven grinning down on all
of us....’ For our family she has a special place of honor. Kind of like
Jesus, even though she couldn’t hold on to this earthly life -- she gave the
incredible gift of life to a little baby boy, who without her wonderful gift,
would have surely died.
“Your family has
been in our prayers since we learned Samuel needed a new heart to survive. On
the night of his surgery, we initially cried for joy -- happy and relieved
Samuel would be given a chance. Moments later that joy turned to tears of
sadness as we stopped to think of your grief. We are so sorry you have lost your
little angel. As much as we desperately wanted to save Samuel, we hated the fact
it took a tragedy in your family. It really broke our hearts.
“We are thankful you are faithful Christians. We are
too. Your family has been on the prayer list at our church. Our congregation is
pretty close-knit. Many members decided to fill out a card for your family
(you’ll find it enclosed). They truly care about how you are doing.
Samuel was born on May
7. He was three weeks premature.
Although he was little
(four pounds, five ounces), he looked healthy and beautiful. They took him away
to be cleaned up after birth. Hours passed. We couldn’t figure out why they
hadn’t brought him into our room. They finally told us a specialist was on his
way to look at Sam. We learned there was a problem with his heart -- “maybe
just a tight valve.” With each specialist who looked at him and with each
test, the prognosis got worse. Finally, when he was four days old, we learned
his only hope was for a heart transplant. Doctors were straight with the facts
from the beginning. They said there was only about a 50-percent chance a heart
his size would be donated in time. Even if there was a heart, they said, the
odds of him surviving the surgery itself was around 50 percent, at best. But we
know God doesn’t work with percentages. We could only pray and give him over
to God.
“Sam was exactly two
months old on the day of his surgery. During the surgery, there was a rough
period when things looked bleak. But somehow, he pulled through. Perhaps a
little angel was spurring him on, telling him to fight hard. On July 3 l,
three-and-a-half weeks after surgery, he came home for the first time. He is
doing great. So far, no rejection.
“Samuel has a big
brother named Steven who is three-and-a-half years old. He loves Samuel and
tries to help take care of him. He is really proud of being a big boy now. My
husband Steve is an accountant at a university. He enjoys all kinds of sports,
especially golf. He is a wonderful singer. He is involved in a quintet which
sings at churches and events. I am a full-time room. I’m just a few college
courses away from becoming an elementary school teacher. We decided to hold off
graduation and teaching until the boys get older.
“We would be delighted to receive the crocheted blanket
for Samuel. What a thoughtful gesture! It will be a wonderful keepsake. Please
tell the baby’s grandmother we appreciate it so much. You are an incredible
family -- so brave and faithful. We will never stop thanking you for what
you’ve done. We pray Samuel will grow up to be a Faithful Christian whose life
will bring honor to the memory
of your little angel.
“We would like to
continue to stay in touch with your family --if you wish the same. We wrote a
note to the Transplantation Society of Michigan to release our personal
information to your family if you request it.
“You remain in our
thoughts and prayers.
Love: Steve, Sue,
Steven and Samuel.”
Joked
Greg when he and Karen took the photograph out of the package the Michigan
family had sent, and gazed upon the face of the smiling baby boy who lived
because of their little girl’s heart: “she didn’t give him any of her
hair.”
Before the month of
October ended, late one night with the girls put to bed, the telephone rang in
the Loomis household and Karen answered it. There was a moment of silence before
she heard a woman’ s voice say: “1 don’t know how to say this, but our
baby has your baby’s heart....”
“I didn’t know
what to say to that,” Karen said. “I just cried and cried.” After
regaining her composure, she and Baby Samuel’s mother talked for two hours, on
into the night.
They’re all good
friends now, having visited often by phone and e-mail. The Loomis family keeps
close track of Samuel’s progress. “Physically, he’s about six months
behind in his development because of the transplant, but he’s doing really
well,” says Greg. “He can’t sit up on his own yet, but he can hold himself
up.
“They took him back
to the hospital for a biopsy of his heart, and it showed no signs of rejection.
So that’s good. And he’s down to taking the last three medicines he’ll
have to take for the rest of his life.”
In February, doctors
in Michigan cleared Samuel for long-distance family, and his parents mentioned
to the Loomises they’d like to come to Camden, Arkansas for a visit in the
Spring.
“It was their idea
to come and be here this particular weekend,” Greg says. “They haven’t
said a thing about it being his birthday, but Sunday is his first birthday”
and the Loomises feel honored at being able to play host for the event.
Maclaine’s father
says he looks forward to seeing the little boy. “I don’t know what God has
in store for him, if he’ll find the cure for cancer or whatever. There’s no
expectations from us for what he’ll do in this life. I just hope he lives a
long, normal life.
“The great thing is:
he’s alive today. Everything else that happens because he’s alive, is our
blessing. That’s how I look at it.”
The Parham
Report--Sunday, May 7, 2000
Reprinted
with permission.
Letters to the editor:
Thanks
for ‘Her Heart...’
From: Linda Loomis of
Camden
I wanted to thank you
for your article, "Her Heart Still Lives" (in the May 7
Report). You did a very good job sharing with others how a family can be
blessed even through loss. We have heard many good remarks about the article.
Again, we appreciate your covering
this story.
In Christ's Love....
EDITOR:
Thank you. To follow up on the story of Linda's granddaughter
Maclaine and Samuel, the tiny Michigan infant who received Maclaine's heart in a
rarely performed transplant, he arrived in Camden that May 7 weekend to meet
donor parents Greg and Karen Loomis, and along with the rest of his parents were
guests of the Loomises at Hillside Baptist Church on Samuel's first birthday, I
got to meet his parents and visit with his Dad, an accountant at a university.
They're really fine folks, and I was impressed by their decision to come to
Camden and Hillside to honor Maclaine's memory on the occasion of Samuel's first
birthday.
By coincidence, my son Robert's first birthday came exactly
a week earlier (the previous Sunday, Hillside pastor Willis Moore had me fetch
the baby from the nursery at the close of morning services and stand at the
altar so the congregation could sing "Happy Birthday" to him). At
Samuel's birthday party in the Fellowship Hall following the next
Sunday's service, I brought
Robert around to "meet" Samuel. I knew "'Baby Sammy" (as
he's known across Michigan to those who followed his story in newspapers and on
TV) would be smaller than Robert because of' his late development, but the
difference in the two babies was still difficult for me to accept. After all,
Robert was born prematurely and was low-weight, too. And the story Karen told me
of how unfortunately Maclaine entered the world sounded just like Robert’s except
that after the eternally long first minute Robert cried, if only for a moment.
Working on the story of Maclaine and Sammy was an intensely
emotional experience for me, having just celebrated Robert's first birthday (in
fact I interviewed Greg and Karen that very' evening, and it was very
hard seeing little Maclaine
in the videotape of her three brief days of life on earth).
As blessed as 1 felt
before hand, knowing the story of Maclaine and Sammy has left me feeling doubly
grateful for my baby boy. My prayers are with Sammy as he grows up (I told his
dad that you can see in Sammy's face he's going to be a sharp kid), and
especially for your entire family for the sacrifice you made. I thank you all so
very much.
The Parham
Report--Sunday, May 28, 2000
Reprinted
with permission.
'Claine & Sammy's Story from the ARORA Newsletter
Maclaine
Elise Loomis
July 3, 1999 - July
6, 1999,
It's just a small little mark. Many of you probably didn't even notice it.
That last little comma is so easy to overlook - just like it would be so easy to
overlook her short life.
But that last little comma holds a very big meaning for us - it means that July
6, 1999 was not the end of Maclaine's story, just a little pause...
Maclaine's
"arrival" on July 3, 1999 changed our lives forever. Sometimes, I
think that she had a bigger effect than our other children, but then I realize
that it wasn't really a bigger effect, it was just more concentrated, since she
was only here for those three short days. God blessed us so much by giving us
that time with her. In those three short days though, we got to hold her, and
love and kiss her, and we even got to give her a little bath and dress her. We
all had a chance to spend time with her - time to take pictures and video. Her
sisters got a chance to know she was real and to be "big sisters." We
got a chance to dedicate her and her short life to the Lord, and shortly
thereafter, we returned her to His eternal care. Most importantly, Maclaine got
a chance to be an organ donor - to give the “gift of life” - that very thing
which she was not able to hold on to for herself, and a very precious little boy
got a chance to live a long and healthy life.
We didn't expect Maclaine's birth to be any different than any of her sisters'.
There were no major problems during the pregnancy nor anything to indicate that
trouble was to be expected. When her delivery did not progress as expected, the
doctor decided that a cesarean section would be required. Even at this point,
Maclaine showed no signs of distress and there were no indications that this
would be anything besides a routine operation and birth.
At 11:31 p.m. that evening, Maclaine was born, but there were no newborn cries
as expected. Maclaine was not breathing and had little or no pulse. The doctors
and staff of the Ouachita County Medical Center worked to revive her - they were
able to get her heart beating normally again, but she required assistance to
maintain her breathing. A helicopter ambulance was called to transport her to
Arkansas Children's Hospital for a more thorough evaluation and treatment.
Sometime around 4:00 in the morning of July 4, "Our Little Angel"
earned her nickname, taking off on that AngelFlight to Little Rock.
From the very first time we talked to the doctors there at Children's, we knew
there was very little chance of seeing all those hopes and dreams we had for
Maclaine's life come to be. She had no reflexes and her pupils didn't dilate
when exposed to the light. The doctors said that a scan of her brain showed
"some of the worst swelling they had ever seen." The doctors were
always honest and straightforward and never lead us to have any false hope for
Maclaine's recovery. We could feel how much the doctors and staff there at
Children's truly cared for us and Maclaine - just like those at OCMC - and we
could tell they hurt along with us as we all knew that Maclaine would shortly be
called home into God's arms.
We realized that God's plans for her life would be different that those we had
hoped for. We knew He must have a very special task for her – one that
required her to be with us only a short time - and we found out that He had some
very special blessings in store for us too. While going through one of the most
painful and heartbreaking times in our lives, God seemed to have blessings and
comforts for us each and every day. While none of them could replace those hopes
and dreams we had for Maclaine, we have never felt so loved and cared for. As we
looked back, we can see all the special things that God did to prepare and help
us through this time – to make things a little “easier.” God sent so many
special, wonderful people into our lives during those days – all the doctors,
nurses, and the rest of the staff at OCMC and Children’s, the people of the
Arkansas Regional Organ Recovery Agency and the Ronald McDonald House, all our
coworkers, and of course, all our family and friends and church family. God
wrapped His arms around us and brought our family together with one heart and
mind – to the point that we could almost complete one another's sentences. All
the decisions we had to make during that time just seemed to fall right into
place.
I think the decision to allow Maclaine to be an organ donor caught the staff
there in Children's Neonatal Intensive Care Unit a little by surprise. In most
cases, the medical staff approaches the family about organ donation, but in our
case, we were doing the asking of them. We asked if she might be able to be an
organ donor and what steps would we need to follow. The NICU staff did not have
all those answers - but they promised to find out. Most of the babies there
usually have problems that prevent them from being organ donors. In fact, none
of their patients had been an organ donor since they had moved into their new
location in the hospital - about a year and a half. Maclaine was about to bring
a new experience into this NICU at Children's.
An EEG taken Monday morning showed the same results as the test done Sunday
morning - Maclaine had no brain activity. Whatever had happened – whatever had
gone "wrong", there were no decisions to make about what treatments to
try or what we needed to do. God relieved us of all the pressure and the heart
wrenching of making those decisions about her life or “quality of life”. All
we could do is return her to Him. After one final test on Tuesday morning that
failed to show the even slightest amount of brain activity, Maclaine was
declared brain dead just after noon. After talking to the ARORA counselors and
signing all the necessary paperwork and answering quite a length of questions
concerning our family medical history, the search began that afternoon - the
search for those waiting for the gift of life.
Knowing that our time with Maclaine was quickly drawing to an end, we - as a
family - bathed her and dressed her
in a beautiful pink dress her grandmother had crocheted. Her “biggest”
sisters worked hard to clean all the glue out of her hair that the EEGs had
left. Then, surrounded by her family and our friends, our pastor led in her
dedication. We thanked God for her – regardless of how short our time together
was. We prayed that God would use her life – both in the effect it had on all
of us and also by being able to help extend or save the lives of others through
organ donation. After the dedication, everyone got a final chance to hold her
and say his or her goodbyes. Her grandparents and sisters left for home early
that evening, leaving Karen and I to spend a last few quiet hours with her.
But those last few hours weren’t really all that quiet though. Maclaine’s care was now under ARORA’s direction – not the Children’s doctors - and they were monitoring her closely and making adjustments and administrating medications that, hopefully, would increase the chances that any organs she donated would be successfully received. They were recording her vital statistics about every fifteen minutes to be able to report to the doctors and teams interested in her organs. Even with all this activity going on, everyone was still so respectful of Maclaine and us. They worked around us when we were holding her and even, at times, just read her vitals statistics through the window so they wouldn’t disturb us.
I
remember that wait was about like waiting for the score of a ball game that you
weren’t getting to see or hear first hand. Almost every time one of the ARORA
counselors would come by, we wanted to know “any word yet.” Well, about
10:00 p.m. we “scored a few points.” There was a little boy in Michigan that
needed a new heart, and he and Maclaine looked to be a perfect match in size. We
had been told how important size was in organ transplants in children and
especially infants - a few weeks of growth could determine whether an organ
could fit or not. A team was preparing to head to Arkansas to examine, recover,
and deliver her little “gift of life” back to Michigan. Because of her
"small" size, however, her heart was all that could be matched.
Regardless of how many lives could be helped or saved, we knew that God had a
perfect plan and that organ donation was definitely a “winning move.”
Time to say our final goodbyes came about 1:00 a.m. on the morning of July 7.
The team from Michigan would be there shortly and I knew we needed to be out of
their way - there was a little boy waiting for a heart. It wasn’t so much a
“goodbye,” but more a “see you later.” We knew that we would get a
chance to see and hold her again – when our days here on Earth had drawn to an
end. We gathered up all Maclaine’s things – we were
amazed how much she had accumulated in those three days - and left her in
God’s care.
In a hospital in Michigan, a little two-month old boy waited for a heart.
Little Samuel was born on May 7, 1999. He was about three weeks early and a little small – about four and a half pounds – but God was watching over him and protecting him. Samuel was delivered by cesarean section about 3:30 p.m., and spared the stress of a “normal” birth, which he would have most likely not survived. Shortly after being born, it was noticed that Samuel was having trouble breathing and that his coloring “just wasn’t right.” Samuel was transferred to the Children’s Hospital of Michigan in Detroit for more test and exams.
After
three days of tests, a problem was found with Samuel’s heart - pulmonary
atresia with intact septum and stenotic coronary arteries, and a solution was
also found – a heart transplant. On May 12,1999, Samuel was placed on the
National Donor Registry List as a priority “1A” – the most critical and
most urgent.
As
they waited Samuel’s mom and dad and big brother and their family and friends
prayed that Samuel would get the heart he needed, but their prayers were
tempered a little by knowing the cost that Samuel’s new heart would come with.
They knew that for Samuel to get the heart he so desperately needed, that
another family would face the loss of their child. So as they prayed for Samuel,
they also prayed for that other family – not knowing who they would be or what
their circumstances would be or even knowing for sure that the heart would come
in time. They had faith that God would answer their prayers for Samuel, but they
faced the possibility that Samuel might not get the heart he needed in time and
decided that if that was God’s will, they would be willing to let Samuel be an
organ donor to help those others that waited still. His family and the hospital
held a news conference, making an appeal for more organ donations, telling about
little Samuel and his need for a heart. They knew that their appeal might not
end up helping Samuel directly, but they knew there were still others out there
waiting for those “gifts of life.”
On
the night of July 6th, they got the call they had been waiting for. A
possible donor heart had been found for Samuel. A recovery team left Detroit and
headed south to check out to heart to make sure it would work for Samuel. At
about four o’clock that next morning, the word came – the heart was a match.
Samuel was readied for his part of the surgery while the recovery team brought
his “gift of life” back to Detroit. His mom and dad spent some special time
holding and loving Samuel – they knew that there was no guarantee the surgery
would be successful and there were many things that could go wrong. At about
5:00 a.m., Samuel went into surgery, his fate and future was in the hands of a
transplant team working with a tiny gift of a new heart and in the hands of God
that guided and protected them all.
Eight
hours later, Samuel had a new heart and a new hope for life.
He
grew bigger and stronger every day, and his family and the hospital held another
news conference, sharing the good news about Samuel’s new heart – praising
the skill of the transplant team, thanking the donor family, thanking God for
all His blessings and care, and reminding everyone that more organ donors are
needed for all the other people waiting for the “gift of life.” Only three
and a half weeks after getting his new heart, Samuel got to go home from the
hospital on July 31.
In
September of 1999, we sent ARORA a letter to offer to the family of the little
boy that received Maclaine’s heart. We wanted them to know a little bit more
about “Our Little Angel” and her family. We wanted them to know how much God
cared for us through her short life and death and that we knew that God was in
control of all things and that we were trusting in His plans. Most of all, we
wanted them to know that we were praying for them – that God would bless them
and that watch over them all.
In
late October, a package arrived at our door. Even though it was small, it held a
lifetime of love and thanks. Inside, a letter from the recipient family, a
beautiful angel ornament holding a heart engraved, “To my little angel, love
Samuel”, three angel-bear pins for our girls, and a photograph of a precious,
smiling little boy. It seemed like Christmas had come a little early that year.
We were so overjoyed to hear about Samuel and how well he was doing. We had
prayed back on that night in July, that the family of this little boy would love
him and care for him just like we would have loved and cared for Maclaine, and
that they would teach him to truly appreciate the “gift of life” that he had
received and to thank God for all His protection and care.
Also
in that package was a form – a form to sign allowing ARORA to release our
personal information to Samuel’s family if they would like to contact us
directly. Sue and Steve had said in their letter that they would like to stay in
touch with us if we would like and that they had already authorized the release
of their information. We signed it and mailed it back to ARORA the very next
day.
About
a week later, one Wednesday night after church, the phone rang. We ended up
talking to Sue and Steve for about two hours that night.
As
much as it hurt to lose Maclaine, it has been just as much of a joy to know
Sammy and Steven and Sue and Steve. They have become family to us – truly
another blessing from God. They have reciprocated Maclaine’s “gift of
life” by sharing Sammy with us.
Over
these last two years, we have gotten to share in all the wonderful events in his
life – and we have also shared in the times of concern. As Sammy gets bigger
and stronger and get all those teeth for a nice, big smile, we get to see the
new pictures. When he took those first little steps on his own and started
walking, we got to hear the good news that very day. And when Sammy gets sick
with an ear infection, we know and we pray for God to watch over and protect and
heal him. And when time comes for one of his biopsies to check for rejection, we
are praying – and we rejoice when we get the good news that not the least sign
of rejection has been found.
Sammy
and his family have been so much more than we ever hoped and prayed for that
night. I have said if she would have been able to donate all her organs, and all
the recipients and families responded like this, we would have been simply
overwhelmed. In May of 2000, we got to celebrate a most wonderful occasion with
them - his first birthday! Sammy and Steven and Sue and Steve came down to
visit, just in time for Sammy’s first birthday. They got to meet our family
and see where Maclaine would have grown up. We got to hold little Sammy
ourselves and see that smiling face and share a few days with him and his
family. And we got to listen to that heart beating again – a first hand
experience of the wonder and miracle of the “gift of life.”
| Front:
Jessica & Sarah Beth Back: Greg, Karen with Katelynn, Sue with Samuel, & Steve with Steven |
We
hope Maclaine and Sammy’s story will touch people’s hearts and impress on
them the importance of organ donation. There are so many more people out there
waiting on that “gift of life” – children, teenagers, and adults of all
ages. There are people that are days or even hours away from running out of time
to wait. We need everyone to be willing to be an organ donor. Then, we need
everyone to make sure your family knows your wishes concerning organ donation.
That’s all there is to it – be willing and make sure your family and friends
know.
We
are always so happy to be able to share our own experiences with anyone that
would like to hear. We wear buttons every day with Maclaine and Sammy’s
pictures that say, “I’m a Donor’s Dad/Mom!” When someone asks about the
buttons, we have a chance to tell their story and all about organ donation. For
those times when they don’t have time to listen to the full story or if they
just want to know a little more, we have created a website in Maclaine’s
memory and in Samuel’s honor –
www.clainescorner.com There
you can read much more of their story, see pictures of Maclaine and Samuel and
their families, find links to websites with more information about organ
donation and infant loss, and read the latest updates on Sammy and watch him
grow. Please feel free to visit “The Corner” and leave us a little note in
the guestbook. And if you have any questions for us or need any information we
can help you with, email links are there in the frame on the left.
When
we tell about Maclaine and Sammy and the “gift of life,” it’s like she’s
living on - actually, a part of her is. Her little heart beats on today in a
special little boy up in Michigan.
Would you like to add a “,” to your life too? Be an organ donor.
Greg
& Karen Loomis
ARORA Newsletter--Fall
2001
She's
only three months old, so there is not quite yet the pitter- patter of little
feet around the Nix Street household of Greg and Karen Loomis. But there is the
pitter-patter of a tiny heart at work in the latest Loomis arrival, and that's
made all the difference in the world to this particular family.
Maegan
was born the day after Christmas, a miracle baby.
Her mother concedes, "She probably wouldn't have been born" if not for
the tragic birth of her sister Maclaine back in the spring of 1,999.
"Maclaine was going to be our last one," a fourth daughter for Dad Greg.
"When Greg said he had been looking forward to walking a fourth girl down
the aisle, I almost cried," Karen said Friday evening while holding Maegan
in her lap.
It's a much-publicized story: Maclaine had to be revived at birth and showed no
signs of consciousness after doctors at Camden hospital got her heart beating.
Greg and Karen made the hard decision to allow a heart transplant, and a medical
team from Michigan went to work to give the gift of life to another newborn.
"Baby Sammy" as he was called in the Michigan media, became the
youngest person ever to undergo a heart transplant.
The two families eventually established contact, and the Loomises came to learn
what a difference their daughter's heart had made in a home clear across the
country. For Sammy's first birthday, his family traveled south to Arkansas to
spend the weekend in Camden and attend church -
at
Hillside Baptist -
to
express their gratitude.
Both families remain in close contact by Internet and telephone, and Greg
describes their relationship as if Sammy -
soon
to turn three years old - as a nephew. "I really enjoy hearing how he's
doing," he said.
Apparently, such closeness between families of donor and recipient was once
atypical. Organizations such as the Arkansas Regional Organ Recovery Agency -
which helped arrange the transplant of Maclaine's heart - work to such extent to
protect the privacy of donor families that establishing communication with the
recipient is difficult.
The Loomises' acceptance of the loss of their daughter and the love they hold
for Sammy and his family has been something of a success story for ARORA. In
just the past few months, they've been featured in an Arkansas newscast tied to
an episode of NBC' s ER about
organ transplants, put before a class of Henderson State University psychology
students studying grief and honored at the Governor's Mansion by Mike Huckabee.
This weekend they're being called back to Little Rock for more recognition by
ARORA. In June, the organization is sending the entire Loomis family to Disney
World in Orlando, Florida for a week to participate in the biennial U.S.
Transplant Games.
"Just a few years ago it seemed almost no attention was paid to organ
transplants," Greg said. "Now it seems like we're picking up
speed.”
Certainly, ARORA shows a preference for the Loomises as spokesfamily for the
cause. Their story never ceases to stir interest.
Now Greg and Karen have added another chapter with Maegan.
"I was teasing her the other day," recalled Karen. "She was lying
in my lap, grinning. All of a sudden she laughed -
a
big belly laugh out loud -
and
I said her sister Maclaine is tickling and playing with her."
Her mother good-naturedly worries Maegan will be spoiled from too much attention
spilled over from the loss of Maclaine. Big sisters Jessica (12 years old),
Sarah Beth (11) and Katelynn (five) constantly lavish coos and kisses upon their
infant sibling. Having missed Maclaine, "they love Maegan" and even
the youngest, Katelynn, doesn't mind a bit that she's no longer the baby of the
family. "They all take care of their new sister," said Karen.
Maegan missed the difficulties which attended Maclaine's birth. This time, Karen
took off work as a Camden hospital nurse for the last six months of her
pregnancy. Although Maegan arrived a month early, there were no problems during
the caesarian delivery, and today she is an alert, healthy, thriving
child.
|
|
|
Thankfully,
the Loomises weren't faced again with the decision they had to make in
'99.
What
they tell the public in their new role as proponents of organ donation is
that they're at peace with what happened.
"All our lives would have been a lot more disappointing if we had
said no.,” declared Greg.
We
hope Maclaine and Sammy's
story
will touch people's hearts and
impress upon them the importance of organ donation. There are so many more
people out there waiting for that "gift
of life." Children, teenagers and adults
of all ages. There are people who are only days or even hours away from running
out of time. We need everyone to be willing to be an organ donor. Then we need
you to make sure your family knows your wishes concerning organ donation: That's
all there is to it - be willing, and make sure your family and friends know.
We are always so happy to be able to share our own experiences with anyone who
would like to hear us. Every day we wear buttons with Maclaine's and Sammy's
pictures. The buttons say "I'm a Donor's Dad!" and "I'm a Donor's
Mom! " When someone asks about the buttons, we have a chance to tell their
story and all about organ donation.
For those times when people don't have time to listen to the full story, or if
they just want to know a little more, we have created a website in Maclaine's
memory and in Samuel's honor- www.clainescorner.com There you can read much more
of their story, see pictures of Maclaine and Samuel and their families, find
links to websites with more information about organ donation and infant loss,
and read the latest updates on Sammy and watch him grow.
Please feel free to visit "The Comer' and leave us a little note in the
guestbook. And if you have any questions for us or need any information we can
help you with, e-mail links are there in the frame on the left.
When we tell about Maclaine and Sammy and the "gift of life," it's
like she's living still. Actually, a part of her remains alive. Her little heart
beats on today in a special little boy up in Michigan.
-
Greg and Karen Loomis
ARORA newsletter
Fall 2001
The Parham Report--Sunday, April
14, 2002
Reprinted
with permission.
Copyright
© 2000 'Claine's Corner . All rights reserved.
Do not duplicate or redistribute in any form without permission.